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In Romania traiesc 240 de persoane cu talasemie majora cu varste cuprinse intre cateva luni și 49 de ani. Din pacate, bugetul alocat programului de talasemie nu este suficient pentru tratamentul tuturor pacienților, conform ghidurilor internaționale.
Cum stii daca ai talasemie
Puteti afla daca sunteti sau nu purtatori de tara talasemica printr-un set de analize de laborator. Statutul de purtator (talasemie minora) nu presupune o boala si nu afecteaza cu nimic starea de sanatate, durata si calitatea vietii purtatorului. In schimb, atunci cand un purtator decide sa aiba un copil lucrurile se schimba.
Citeşte mai mult pe sfatulparintilor.ro
Citeşte şi Pacienţii cu forme rare ale unor boli vor beneficia de tratament cu molecule noi
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